Wednesday 12/26/2001 11:31:20pm
Name: michael p cox
Where you live: p.o.box 887 marana az.
E-Mail:
Interest in FAS: other
Child's age and Dx:
Comments: i belive my wife as fae and looking for help.
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Thursday 12/13/2001 6:22:25pm
Name: michelle kleehammer
Where you live: north carolina usa
E-Mail: kleehammer3@aol.com
Interest in FAS: parent
Child's age and Dx: age 8 male FAS/FAE
Comments: dx: fas/fae multiple drug exposure crack baby multiple health problems from the FAS
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Monday 12/10/2001 5:59:10pm
Name: Emily Myers
Where you live: Philidelphia, PA
E-Mail:
Interest in FAS: student
Child's age and Dx:
Comments: This web site is amazing! I have learned so much from the articles, pictures, and stories. I choose this topic randomly for a report and now I have a serious interest in researching and educating others.
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Monday 12/10/2001 5:58:44pm
Name: Emily Myers
Where you live: Philidelphia, PA
E-Mail:
Interest in FAS: student
Child's age and Dx:
Comments: This web site is amazing! I have learned so much from the articles, pictures, and stories. I choose this topic randomly for a report and now I have a serious interest in researching and educating others.
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Tuesday 12/04/2001 8:46:08pm
Name: Anna Pertzoff
Where you live: Northampton, MASS
E-Mail: apertzoff@hotmail.com
Interest in FAS: student
Child's age and Dx:
Comments: Hi there, I am a graduate student at Smith College and am doing my research paper on FAS. I had the opportunity to follow a little girl with FAS around for a day to gather information for a case
study and I was intrigued my her and her disability. I thought I might click on the "net" and come up with a few things to read for my paper when I found your web-site. Now 85 pages of notes later, I'm struggling to fit it into 7! This site is incredible - easy to use, fascinating, educational and above extremely personal. I feel like I've known all of you for years (especially John!!). You've provided me with a wealth of information and a desire to educate others about FAS past this assignment. Now if I can only get it done by Thursday!
Thank you,
Anna
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Tuesday 11/27/2001 10:59:13am
Name: Marlene Borchert
Where you live: Ellicott, Colorado
E-Mail: MrsBwwjd@aol.com
Interest in FAS: parent
Child's age and Dx: 22 facial deformity
Comments: I have lived this nightmare for almost 23 years blaming myself for drinking and drugging through my pregnancies in total ignorance of what I was doing to my unborn baby. At the time in 1979 there was no information about this and no one was concerned or cared about it. I think about this every day of my life and cannot forgive myself. I need to be in contact with other parents of kids with FAS.
Thank you,
Marlene Borchert
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Tuesday 11/20/2001 10:28:57pm
Name: Susan
Where you live: Arizona
E-Mail: Microdragonfly@msn.com
Interest in FAS: parent
Child's age and Dx: 2 1/2
Comments: I have adopted a son who we believe has FAS. I have taken one of your classes through DES. I appreciate the web site. It allows me to reveiw the information I was given since there is so much to know.
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Saturday 11/17/2001 8:06:49am
Name: Jo-D Roth
Where you live: Ft. Lauderdale
E-Mail: bjdroth@directvinternet.con
Interest in FAS: parent
Child's age and Dx: 27, ADD, depression, anxiety dis., FAE
Comments: I have so much to learn and your sight is a great beginning. Thanks.
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Thursday 11/15/2001 3:48:41pm
Name: lori awasis
Where you live: Courtenay , B.C. Canada
E-Mail: awasis_lorraine@hotmail.com
Interest in FAS: parent
Child's age and Dx: 12 yr old female
Comments: My girl has not yet been diagnosed to actually have F.A.S or F.A.E ,but she definetly has all the symtems she now is in a foster home but i want her at home because she will probably think that I have rejected her like her dad.
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Monday 11/05/2001 8:16:03am
Name: Cassie Simpson
Where you live: Summerville, SC
E-Mail: bakersdz1013@hotmail.com
Interest in FAS: parent
Child's age and Dx: 21, ADHD/ADD and FAS
Comments: I learned about the ADD/ADHD in approx. 1989 after I had been her adoptive parent for 3 years. She is now 21 and after a thorough testing by Dr. Brian West, I learned of the FAS. Apparently her problem was not sufficiently noticeable to have been diagnosed at birth or prior to this. This web site has been most beneficial to me and I look forward to time now to pour over all that I have printed.
I wish I could find more resources here in SC. Do you know of any? Dr. West may; my husband and I are meeting with him next week.
Thank you for all the hard work that went into this web site and for all your research.
Sincerely,
Mrs. Cassie Simpson
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Saturday 10/27/2001 10:47:33pm
Name: Jennifer
Where you live: Ohio
E-Mail: jen_a67@hotmail.com
Interest in FAS: parent
Child's age and Dx: 16,17&18
Comments: I'am speechless. There are so many things that whirl inside my head and heart after reading this awsome site!
Every emotion I have has been stretched to the fullest extent. My husband and I dated for 6 yrs before we got married and have been married for 13. In that time I have watched the efforts of my In-laws trying to raise their adopted daughter and now my husband and I are raising three of his sisters children. We have no doubt that his sister is FAS and we know that our children were exposed to alcohol as well. Two of our children are doing remarkably well, while the eldest is not functioning very well at all. After living with this for so long, There aren't words that are suitable to describe my feelings. Thank you for this site!
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Friday 10/19/2001 10:17:27pm
Name: Maggie Massery
Where you live: Pittsburgh, PA
E-Mail: maggiephoto@yahoo.com
Interest in FAS: parent
Child's age and Dx: 3.2 years, FAS
Comments: My husband and I are in the process of adopting our foster child who has FAS. He has just turned 3 and we have had him since he was 7 months old. We love him very much and I want to have as much info on FAS as I can. I have been to a couple of seminars and have read a couple of books on the subject. I would very like much to hear the success stories. Everything I read is very scary. I am so glad this web site is here. My fc siblings fm told me about it because we have been looking to info on "adoption subsidies". Our county apparently goes by our income and not that the child is special needs. We are working on it and I feel hopeful that it won't be a huge problem to solve. Thank you for sharing your experiences and knowledge with those of us just starting on this unexperienced path.
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Saturday 10/13/2001 11:57:06pm
Name: Crystal Hill
Where you live: Calgary, Alberta Canada
E-Mail: irishheart1977@hotmail.com
Interest in FAS: student
Child's age and Dx:
Comments: This web page was very informative, and a real eye opener! Thank you all for educating, and sharing your personal and honest accounts concerning FAS.
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Wednesday 09/26/2001 10:58:21am
Name: Magdala Voltaire
Where you live: Miami, Florida
E-Mail: Luvdivine1080@aol.com
Interest in FAS: student
Child's age and Dx:
Comments: This was a very informative site. I really appreciate that this site had pictures. I gained a better clearity on what the brain of a child with FAS looks like, also what a child with FAS might look like.
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Friday 09/14/2001 6:03:00pm
Name: Dr. Diane L. Russell
Where you live: Nanaimo, B.C. Canada
E-Mail: drdi@telus.net
Interest in FAS: professional
Child's age and Dx: N/A
Comments: Thank you for providing such a fabulous web site! This is a wealth of information that I can use in my clinical neuropsychology practice!
Keep up the good work!
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Tuesday 09/04/2001 7:48:49pm
Name: Lymarie
Where you live: San German, Puerto Rico
E-Mail: lymapr@hotmail.com
Interest in FAS: student
Child's age and Dx:
Comments: Very cool and educational page!!!
I give you two thumbs up!!!
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Monday 09/03/2001 12:41:30am
Name: Judith Sheriff
Where you live: New Mexico
E-Mail: sheriffsnm@aol.com
Interest in FAS: parent
Child's age and Dx: 15, FAE; 13, FAS; 5, FAS
Comments: As an adoptive parent of many children, most of whom came from foster care and were prenatally exposed to both alcohol and drugs, I am always looking for resources. This web site, at first visit, is amazing. Thanks so much. I'm going out to buy some Mountain Dew right now.
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Thursday 08/30/2001 3:29:40am
Name: helen braun
Where you live: Nykoping, Sweden
E-Mail: helenbraun@edu.nykoping.se
Interest in FAS: teacher/instructor
Child's age and Dx:
Comments: I am working as a special educationalist in a primary school in Sweden. I saw some children that did not fit in usual explanations for beeing different and suspected FAS. I wanted more facts about it and found this excellent site on the web!
Thanks and good luck!
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Monday 08/20/2001 0:17:12am
Name: Tamara Partridge
Where you live: australia
E-Mail: tamarap@ozemail.com.au
Interest in FAS: parent
Child's age and Dx: female age 4yrs and female age 5yrs
Comments: this is a wonderfull site I'v added it to my favourites
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Thursday 08/16/2001 10:15:47pm
Name: Ron
Where you live: San Diego
E-Mail: matadorrr33@hotmail.com
Interest in FAS: student
Child's age and Dx:
Comments: I'm an RN working on my BSN. Just doing a little research on FAS. Great site, thanks for all you do.
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Tuesday 08/14/2001 3:48:13pm
Name: NANCY D'AMODIO
Where you live: MONMOUTH COUNTY NEW JERSEY
E-Mail: NANCYDAMODIO@MSN.COM
Interest in FAS: parent
Child's age and Dx: 15 YEARS OLD FAS
Comments: I HAVE READ MOST OF THE POSTED SITES AND FIND THEY MATCH ALMOST EVERY FEELING I HAVE ABOUT FAS. I ADOPTED MY SON WHEN HE WAS 1 YEAR OLD. I HAVE HAD HIM SINCE HE WAS 3 DAYS OLD. THE BEST THING FOR US IS WE WERE TOLD HE HAD FAS WHEN WE RECIEVED THE CALL FROM DYFS. BUT THAT DID NOT MEAN MUCH TO US AS WE HAD NEVER HEARD OF IT BOY DID WE HAVE A LOT TO LEARN. WE HAVE HAD OUR UPS AND DOWNS BUT WE HAVE BEEN LUCKY. WE PUT OUR SON IN A PROGRAM AT 2YRS OLD AND SCHOOL AT 3 YEARS OLD FOR HANDICAP CHILDREN. WE HAVE WORKED WITH HIM AND FOUGHT FOR SPECIAL PROGRAMS IN SCHOOL AND IT HAS PAID OFF. HE WILL START VOC TECH IN THE FALL. HE WORKS WITH A NEIGHBOR MOWING LAWNS. HE ALWAYS MANAGES TO FIND WORK WITH SOME NEIGHBOR. AND HE ALSO GETS THE NEIGHBORS TO TAKE HIM ON THEIR BOATS FISHING. HE IS HAPPY NOW AT LAST HE LIKES HIS SCHOOL IT A VERY PROGRESSIVE SCHOOL. HE IS 15 BUT HAS THE BELIEFS OFA 10 YR OLD. HE DOES TRUST EVERYONE HE MEETS. WE KEEP AS CLOSE AN EYE ON HIM AS WE CAN. WE LET HIM GO FISHING TO THE PARKS OR BEACH. MOST OF THE TIME THERE IS NOT A PROBLEM. HE SHARES MOST OF HIS PROBLEMS WITH ME. WE SIT AND TALK THEM OUT. HIS QUESTIONS NOW ARE MOSTLY ABOUT DRINKING HE WANTS TO KNOW WHAT GETTING DRUNK FEELS LIKE. I TRY VERY HARD TO DISCOURAGE HIS URGE TO DRINK. TO MY KNOWLEDGE HE HAS TRIED BEER BUT NOTHING ELSE. I TELL HIM ABOUT HIS FAS AND WHAT THAT MIGHT MEAN TO HIM AND HIS BODY. I HOPE IT IS JUST QUESTIONS AND NOTHING MORE. HE HAS FRIENDS AND WORKS AND GOES TO SCHOOL. I COULD WRITE FOR HOURS ON WHAT WE HAVE BEEN THROUGH WITH FAMILY AND NEIGHBORS BUT WHO HASN'T BEEN THERE. I AM GLAD MY SON IS HAPPY AND I LOVE HIM MORE THAN ANYTHING IN THIS WORLD AND WILL ALWAYS FIGHT FOR HIM.
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Tuesday 07/17/2001 10:25:01am
Name: Barb McBride
Where you live: Vancouver, BC CANADA
E-Mail:
Interest in FAS: teacher/instructor
Child's age and Dx:
Comments: I am doing a diploma program entitled "Creating an Inclusive Environment for Special Needs Students" and am currently working on a web search project. I chose FAS because I work in the inner city, have taught several children with this designation, and wish to further my understanding of how better to support these children in their learning. I found your site extremely informative. Thanks
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Monday 07/02/2001 7:36:34am
Name: Shelley Des Fountain
Where you live: South Africa, Cape Town
E-Mail: ShelleyD@nedcor.com
Interest in FAS: other
Child's age and Dx: 9 years
Comments: My sister was adopted and has FAS. We are desperately trying to get info on Home schooling etc to try get her somewhere in life. Please help if you have any info that may be of help!
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Saturday 06/30/2001 6:12:10pm
Name: ron jorgenson
Where you live: Port Alberni BC Canada
E-Mail: ronpenn1@island.net
Interest in FAS: teacher/instructor
Child's age and Dx:
Comments: Thanks for all your work in setting the site and keeping the flow of effort happening. We are just beginning a community action group here in Port and so I will be back again and passing on your info to parents and professionals.
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Monday 06/25/2001 6:03:25am
Name: Kathy Mitchell
Where you live: Maryland
E-Mail: fasmom1@aol.com
Interest in FAS: parent
Child's age and Dx: 28
Comments: Theresa, I work for NOFAS (Nat Org on FAS) and have heard great things about your site. FANTASTIC!!! It is people like you that make huge changes in the universe, thanks for all you do! I hope to cross paths some day soon, Kathy
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Tuesday 06/19/2001 12:21:13am
Name: Patrick Breslin
Where you live: La Crosse, Wisconsin
E-Mail: breslinp@western.tec.wi.us
Interest in FAS: teacher/instructor
Child's age and Dx:
Comments: Our college (Western Wisconsin Technical College) is planning its first FAS/FAE Awareness Week in September. You are among the websites that helped inspire us to carry the message. We have an entire student population of child bearing age that are also members of a larger community. Some great possibilities here for expanding our effort.
Patrick
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Monday 06/18/2001 4:19:19pm
Name: Vangi Ryan-Boose
Where you live: Toronto, Canada
E-Mail: eryan-boose@TorontoCAS.ca
Interest in FAS: professional
Child's age and Dx:
Comments: Very interested in FAS/E research, particularly as it impacts on child welfare and foster care/adoption.
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Tuesday 06/12/2001 8:13:29pm
Name: vIOLA f sANTOS
Where you live: kEAAU, hAWAII
E-Mail: wwwFrances1447@aol.com
Interest in FAS: grandparent
Child's age and Dx: Alex13,Tasha12,Chris11,Zamber10,Xantan6
Comments: All five siblings have ADD ADHD ODD,LD, Emotional Disturbance, Fas/Fas-E during utero,drug n alcohol abuse,child neglect temper tantrums, verbal profanity abuse towards caretakers etc.
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Monday 06/11/2001 8:28:21am
Name: Mary Anne Hopkins
Where you live: Halifax, Nova Scotia, Canada
E-Mail: mhopkins@supercity.ns.ca
Interest in FAS: teacher/instructor
Child's age and Dx: N/A
Comments: Excellent Site!!
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Monday 05/07/2001 8:32:04am
Name: Anna Plett
Where you live: Manitoba, Canada
E-Mail: emchurch@mb.sympatico.ca
Interest in FAS: parent
Child's age and Dx: 4 adopted children ages 20-28
Comments: It's been a long hard journey. When we adopted our children we had no idea about FAS. During the last 6 years we began to become aware that maybe this was the reason why all our parenting skills were never enough.
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Sunday 05/06/2001 7:26:22pm
Name: Jeanne
Where you live: Covington Washington
E-Mail: jlpett.msn
Interest in FAS: student
Child's age and Dx:
Comments: Thank You for all the wonderful stories and information I will always pray for these children of God.
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Thursday 05/03/2001 11:33:47am
Name: Raven R. Harris
Where you live: Connecticut
E-Mail: rharri@conncoll.edu
Interest in FAS: student
Child's age and Dx:
Comments: Thank you for sharing valuable information.
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Tuesday 05/01/2001 6:28:45pm
Name: Carol B. Landberg
Where you live: Surfside Beach, SC
E-Mail: carollandberg@usa.net
Interest in FAS: other
Child's age and Dx:
Comments: Dear Teresa:
I am a foster parent (specialize in teenagers) and within the last two years have had a couple of kids that were different...into lots of trouble, but not evil or malicious; did the very things they were asked not to do, but were not oppositional or defiant; hated school, but claimed that they were smart.
AND THERE WAS NO DIAGNOSIS ON THEIR CHARTS except the usual ADD, ODD, etc.
But I knew that there was something more going on. There was a difference. In doing research for over a year now, on the net, I have, on my own, determined that these kids are FAS and have finally achieved success in having them accurately diagnosed. (One girl even had had several surgeries on her ventral septal valve - a classic FAS symptome, but the doctor did not know that it was a FAS symptome and did not forewarn the then foster mom so that the appropriate education plan could be established. The girl is now 17 and THE PROGNOSIS IS POOR to quote the literature).
But I have become rabid on the subject and plan to speak at all of the local community organizations' lunch meetings, etc. May I freely use the brochures, quote you, etc., with credit, of course?
Thank you for your response.
Carol Landberg
carollandberg@usa.net
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Tuesday 05/01/2001 1:07:19pm
Name: Cheryl Peters
Where you live: Knoxville, Tn
E-Mail: cpaformds@aol.com
Interest in FAS: parent
Child's age and Dx: 17 1/2 - - ADHD, FAS
Comments: My step-son was adopted - his birth mother as a known alcoholic. After his adoptive mother died, his father "relied" on the school system and local physicians to tell him what was wrong with Charlie. It has only been in the last 2 years when it became obvious that Charlie was not going to "grow out" of his bad behaviors, that his father sought out additional testing. Unfortunately, Charlie could be the FAS poster child - - with most of the developmental issues and behaviorial problems. To further complicate things, there are few resources available here in Tennessee and we have wasted a lot of time and energy getting lost in the mental health system, which is NOT qualified to deal with FAS. We are in the process of getting a neurological assessment: to see if medications would help manage the ability to focus and to see if a FAS diagnosis could be officially obtained to classify Charlie as "other medical impaired" - which could then allow him to qualify for Vocational Rehabilitation. To date, even though his IQ is only 77 and his behaviour is so disruptive that he is on the verge of long term expulsion from the school system, Charlie has NOT qualified for special education or ANY special accomodations. Your website and information obtained from NOFAS have been the best resources that we have found to help us to better understand this horrible impairment.
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Sunday 04/29/2001 9:13:13pm
Name: Jackie
Where you live: Long Beach
E-Mail: Jackie33@Prodigy.net
Interest in FAS: student
Child's age and Dx:
Comments: I just wanted to let you know how informative your website is. I found everything and more than what I would need for my presentation on FAS.
Thank you very much.
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Thursday 04/26/2001 5:45:15pm
Name: Anne
Where you live: Nassau, NY
E-Mail: mariahboo4@juno.com
Interest in FAS: parent
Child's age and Dx: Sara, 20, FAE; Rick & Kevin, 12, FAE;
Comments: One more child - Mariah, 7, FAE. The 3 younger children have a confirmed diagnosis. Sara will be evaluated soon. She has most of the behaviors but her birth mother only recently admitted having used alcohol during her pregnancy. I love your site. Being "new" to this, I find it most helpful. Thank you for all of the time you put into it.
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Tuesday 04/24/2001 10:24:12pm
Name: kelly thompson
Where you live: bendigo
E-Mail:
Interest in FAS: student
Child's age and Dx:
Comments: Excellent information
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Saturday 04/07/2001 6:48:49pm
Name: Alyssa Lee
Where you live: Seattle, WA
E-Mail: tulipbeans@aol.com
Interest in FAS: sibling
Child's age and Dx: 11 yrs old FAE & more
Comments: my sister just got diagnosted with fae. our mother is denying she drank or did drugs. she is going through court to have treatment stopped for my sister. im pretty discusted.
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Saturday 03/31/2001 10:33:00pm
Name: Colleen Woodbury
Where you live: Hooper, UT
E-Mail: rocwoodb@aol.com
Interest in FAS: parent
Child's age and Dx: twins -- 13 yrs. FAS, LLD, ADHD, PSSD
Comments: I've watched with interest as my adopted son and daughter, (twins) have grown up with the effect of prenatal exposure to alcohol. Both have been affected very differently. My daughter shows many more of the physical characteristics of FAS, while my son struggles with more severe learning disabilities than his sister. This site was very interesting -- we've come a long way in making information available on FAS. Let's all keep working toward PREVENTION!
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Tuesday 03/27/2001 10:38:40pm
Name: Karen Robertson
Where you live: California, United States
E-Mail:
Interest in FAS: student
Child's age and Dx:
Comments: I knew a little about FAS, but not very much. This site has definitely opened my eyes about drinking while pregnant. I'll
definitely share what I have learned with others.
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Saturday 03/24/2001 10:15:59pm
Name: Ellen Strauss
Where you live: Texas
E-Mail: cstrauss@dashlink.com
Interest in FAS: teacher/instructor
Child's age and Dx:
Comments: This website has been extremely informative and helpful. I read the articles with interest and concern. God bless all of the families and children.
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Friday 03/23/2001 12:10:50am
Name: Donna da momma
Where you live: Mass
E-Mail: Scottmiller1@mediaone.net
Interest in FAS: parent
Child's age and Dx: 7, FAS, 8, FAE, 7mo, preemie
Comments: Just checking your pages, so glad you found a new server. Keep in touch, kids are great and baby is getting BIG.
Living the FAStimes everyday. Big hugs to those beautiful 'kids'!!!! Loveya!
Donna, Scott, Alicia, Matthew, and Jeremy
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Wednesday 03/21/2001 1:30:24pm
Name: Gloria & Peter Armistead
Where you live: Wigan Lancashire U.K.
E-Mail: pa0013478@blueyonder.co.uk
Interest in FAS: parent
Child's age and Dx: 7 FAS
Comments: Teresa this is to say a huge THANK YOU, you have been there for us and supported us through thick and thin. You gave your precious time and created a brilliant FAS web site for FASworld UK. This website has given FASworld UK (FASUK) so much credibility. YOUR A STAR. You are, our mentor and support.
Thanks again
Gloria, Peter and Matthew
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Wednesday 03/21/2001 11:20:20am
Name: Jeri Zoerhof
Where you live: Petoskey, Michigan
E-Mail: scottjeri@unnet.com
Interest in FAS: other
Child's age and Dx: 11 FAE
Comments: I married a man with two boys. The youngest has Fae. The Dad has been raising the boys by himself for the past 10 years. Jonathon is a very loving child. I am trying to learn as much as possible so that I can be a better parent to his needs.
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Tuesday 03/20/2001 12:30:00am
Name: Paige Horton
Where you live:
E-Mail: sweeta74cph@aol.com
Interest in FAS: professional
Child's age and Dx:
Comments: Researching treatment intervention guidelines for speech-language pathologists.
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Monday 03/12/2001 11:56:57am
Name: Andrew MacLeod
Where you live: South Carolina
E-Mail: Soccerkid002@hotmail.com
Interest in FAS: teacher/instructor
Child's age and Dx:
Comments: I am doing a report on Fetal alcohol syndrome. I did not relize that alcohol could do that to people.
You are good people for helping the children with fetal alcohol syndrome
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Saturday 03/10/2001 8:52:42pm
Name: Salena Ewing
Where you live: Juneau Alaska
E-Mail: candy_150@hotmail.com
Interest in FAS: student
Child's age and Dx:
Comments: Thank you so much for putting this info on the net more people should know the harm of drinking while your pregnant. Again thank you so much
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Friday 03/09/2001 9:31:20am
Name: jennifer stites
Where you live: redmond oregon
E-Mail: liljendevil_15@hotmail.com
Interest in FAS: other
Child's age and Dx: 15
Comments: i am doing a report on Fas for my health class and your page helped out a lot. I support you and wish you all the best, I hope people who are drinking while pregnant will wait, because children are so much more important than alcohol. God Bless,
jennifer
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Wednesday 03/07/2001 9:15:36am
Name: Heather cook
Where you live: Canada
E-Mail: gina_latte@alloymail.com
Interest in FAS: student
Child's age and Dx:
Comments: I am doing a project on FAS and i found it very helpful to read through this wed page. I had no idea the number of children with FAS it is very upsetting to hear about. thank you for the wonderful web page.
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Monday 03/05/2001 0:02:51am
Name: Allison Smith
Where you live: New Hampshire
E-Mail: ali_ray@hotmail.com
Interest in FAS: student
Child's age and Dx:
Comments: I am doing a reseach paper/presentation on FAS. I found this site to be MOST helpful and I hope to see some new legislation come into effect that will help these parents AND children be able to cope with their disability!